ACT UP NEW YORK: ACTIVISM, ART, AND THE AIDS CRISIS 1987-1993

The exhibition chronicles New York’s AIDS Coalition to Unleash Power (ACT UP) through an examination of compelling graphics created by various artist collectives that populated the group, including Gran Fury, Silence=Death Project, Gang, and Fierce Pussy. The exhibition also features the premiere of the ACT UP Oral History Project, a suite of over 100 video interviews with surviving members of ACT UP New York that offer a retrospective portal on a decisive moment in the history of the gay rights movement, 20th-century visual art, our nation’s discussion of universal healthcare, and the continuing HIV/AIDS epidemic. The exhibition ACT UP New York provides an opportunity to reinvigorate a debate around the realities of HIV/AIDS today, and about the links between visual art, political activism, health, and human rights.

In October I went to Cambridge and saw the unprecedented exhibition ACT UP NEW YORK: ACTIVISM, ART, AND THE AIDS CRISIS 1987-1993.   I took a lot of pictures in order to include them here as a treat for friends who are too far away or otherwise unable to make the trip.  I feel so grateful that I was able to visit and fortunate to know both co-directors of the ACT UP Oral History Project through my involvement with MIX NYC.  I am not sure that I would have been aware of the exhibit otherwise.

On the way to Cambridge I was thinking back to the time I called in to the Brian Lehrer radio show and talked to the woman who screened the calls that day, World AIDS Day.  I was not on the air, but I was telling her that Brian Lehrer has been talking for 20 minutes about whether or not the “stigma of AIDS” has decreased without once mentioning homophobia, without naming the fact that Acquired Immune Deficiency Syndrome was originally called Gay Related Immune Deficiency.  I was literally choking on the words, saying this was all wrong, historically inaccurate, an inexcusable omission.  Where else do we think that stigma came from?  She said she would let Brian know.  I am no expert on this history but at least I know what I remember...

A central theme of the exhibition is the intersection of art and activism, and much of the exhibit amounts to an archive of visual activism and oral history.  The exhibit spans two separate galleries. The first gallery contains the ACT UP Oral History Project and some large-scale visual art, including a fabulously wheat pasted women’s bathroom by Fierce Pussy.  The upstairs gallery has a timeline of milestones, films installed on a loop with a single bench to sit and watch, and a display of posters and stickers.  There are also some prints of the original posters available for visitors.  The film installation includes work by DIVA TV (Damned Interfering Video Activists) and United in Anger: A History of ACT UP by Jim Hubbard, co-founder of both MIX NYC and the ACT UP Oral History Project.

Upstairs, I got totally caught up in the film installation and found myself watching it in its entirety.  One of the films included an expose on the biased media coverage of the 1989 ACT UP and WHAM! (Women’s Health Action and Mobilization) Stop the Church action at St. Patrick’s Cathedral. Watching this transported me back in time.  It made me realize that even within the incredibly homophobic coverage of the action, enough truth squeaked through to have a powerful impact on my life’s direction.  This is no overstatement.  I was a kid and learned about the die-in from TV, but even with this very condemning media coverage I still identified with the protesters.  At 15 in my parent’s house, I came to life for that brief footage. It was one of those pivotal life moments.  

At the exhibit here in the present, I learned that the media got this footage from a participating activist, edited the hell out of it and excised reproductive freedom entirely from their coverage.  But even in that limited, incomplete footage, I had seen my queer future, and shivered in my suburban closet.  Through the haze of media disapproval and selective reporting, I saw not only the commitment and integrity of the protesters but also what they were up against.  I was an angry teenage girl seeing people stand up to those sexist old fucks in the church, confronting Cardinal O’Connor as nothing more than a creepy old man who had so much say over the stories we tell ourselves about sex.  He had so much say over what little conversation there was about HIV/AIDS.  Seeing Cardinal O’Connor step over bodies was the perfect non-metaphor for what was happening.  This action was more than symbolic, it was literally true.

For context, three years prior to the Stop the Church action, Cardinal Ratzinger wrote: “When civil legislation is introduced to protect behavior to which no one has any conceivable right, neither the Church nor society at large should be surprised when other distorted notions and practices gain ground, and irrational and violent reactions increase.”  I heard a portion of that statement in one of the videos, and I felt compelled to track down the exact quote and read it a couple times in an effort to understand the depth of the immorality we were and are up against. 

A time line covers a full wall in the upstairs gallery.  Reading it filled in some gaps in my memory and many more gaps in what I even knew about in the first place.  This history is hardly collected anywhere and certainly not taught to anyone.  Seeing the time line was more than informative, it was powerful.  One of many new things I learned was how in 1992, ACT UP held a political funeral in DC and a procession of 11 people scattered the ashes of their loved ones on the White House lawn.  This event was noted on the wall and there was film footage too, and it really blew me away.  I have been trying unsuccessfully to think of a comparable moment in history.  The only image that comes to my mind is the Memphis sanitation worker strike where some carried signs that read "I am a man."  In both cases people were demanding their humanity be recognized and thereby confronting the deepest roots of the specific injustice at hand.

1981

1991

I watched some footage of a group decision-making process in the midst of an action. A group of protesters at City Hall was trying to come to consensus about whether or not to block traffic to the Brooklyn Bridge.  Some were ready to go, others wanted to wait for more media to arrive to maximize coverage.  Showing even such a minor disagreement is critical to preserving a real history.  There was also some footage of non-violent civil disobedience training.  It was great to see this collaboration documented, to keep away the mythologizing of spontaneous demonstration when there is so much planning, training, debate, and plain old hard work that goes in to making art, protests and demonstrations.

Downstairs, the ACT UP Oral History Project is set up with 14 monitors each displaying a different set of full-length interviews for a total of 102 interviews, many over an hour long.  Each monitor is set up with 2 pairs of headphones and two seats.  The arrangement lends itself to listening with a friend.  The set-up itself seems to request that you share the interview and enter into a conversation, rather than passively listening or keeping what you hear to yourself.  It suggests not only learning but also engagement.

The interviews contain personal stories and the larger story of collective action making a difference.  In one interview I was watching, the person being interviewed recalls a specific action at a Republican fund raiser.   Off-screen interviewer Sarah Schulman, co-founder of both MIX NYC and the ACT UP Oral History Project, asks questions like, "Who else was there, what were their names?"  With this line of questioning, we are hearing not only one individual’s history but also learning our shared history, who we lost, what they did, what ideas they had, what art they made.  And we witness their grief.

The oral histories are now available to students to use in their research projects and available for scholarly study through Harvard University.  And I have some hope that the attention of this particular school has the potential to act as an intervention into academic amnesia about the HIV/AIDS crisis, or maybe even staunch the flow of our history from being drained away by the likes of national public radio.  Maybe amnesia is not the right word, it is more deliberate ignorance of both recent history and the current crisis.   The preservation of these oral histories is in direct defiance of the way our lives and realities are so often ignored. In this way, it seems to be a direct continuation of the work of ACT UP in demanding to be seen, acknowledged and recognized as people.

The protest posters and other art in the exhibit detail a clear connection between healthcare, AIDS activism and reproductive freedom.  The connection is rarely made explicit today, so it was very refreshing to see it plainly demonstrated that when the state attempts to control our sexuality through the restriction of any form of healthcare or information related to sex, we are NOT free.  One of my favorite aspects of the politics represented here is the refusal to compromise on how everything is connected to everything else.  The fact that so much of the art was created by collectives speaks to this sense of connection.  In many different ways the artists and activists declare that our lives, our bodies and our sexuality are deserving of respect, honor and care.  Not just some of us, not just the wealthy ones, not just the monogamous couples, not just those of us with kids.  This message of connection and inclusion could not be more relevant to the current healthcare legislation that would exclude funding for abortion. 

In the words of Gran Fury, “Corporate Greed, Government Inaction, and Public Indifference make AIDS a political crisis.”  ACT UP could have taken up any one of these strands to fight against, but chose to go after all of them and more, all the while exposing the racism, sexism and homophobia at the center of the crisis.  All the art and documentation in this exhibit points to the possibility of working on the details and the big picture all at the same time.  The group affected changes in both the law and the culture.  I was really struck by how the activists could see and define the roots of a crisis in real time, right as it was unfolding.  ACT UP took on not only the church, not only the government, not only the pharmaceutical industry, but also the belief systems in our culture that perpetuate and permit the deaths of huge numbers of people at the so-called margins.  All these documents, posters, interviews and stickers comprise a legacy, a legacy of values like responsibility, loyalty and commitment.


The feeling I took away from the exhibit was nothing less than a moral obligation to continue to work in the same way, by identifying the root causes of injustice and going after them while at the same time not losing track of the real world details that need to be addressed on a daily basis.  The feeling mirrored the time I saw the Stop the Church action on the evening news 20 years ago, but this time there was also a rare sense of external recognition of my cultural identity as queer person.  The disapproving lens was gone, temporarily lifted to reveal a space full of visible, audible expressions of who we are, what we do and how we love.  The exhibit provides a mirror where we actually show up as a community with some shared values and shared history, demanding to be fully recognized as human beings without any qualifications, without trotting out today's tired argument that we are fully human because of how similar we are to straight people, because we have jobs and go shopping, etc.  No "because" at all.  Just respect.